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Cornelia de Lange Syndrome Association (Australasia) Inc

Reaching Out - Providing Help - Giving Hope to Families


Research Participation Opportunity - June 2018

Australian and New Zealand CdLS Families are invited to take part in a speech, language and feeding issues research project approved by the Elmhurst College, IL, USA being conducted by Cheri Carrico.

Professor Carrico (Undergraduate Program Director, Communication Sciences and Disorders. NSSLHA Advisor) has been on the CdLS International Scientific Advisory Council for many years and is a highly respected speech pathologist with special interest in feeding issues. She presented at the International CdLS conference in Sydney in 2003.

Permission and instructions are at the end of the survey.

IRB Approval Letter

Download Questionaire

CdLS Clinic Day and Annual General Meeting

Each year in November we hold our CdLS Clinic Day and Annual General Meeting by turn in cities around Australia. Specialist doctors and therapists attend to update families on progress in their area of expertise and one:one consultations are offered. This is a great opportunity to meet other parents, people with CdLS, and their siblings.

In 2018 this will be held in Brisbane. Watch this space for details, which will be available closer to the time.

Clinic Day CdLS Australia

International CdLS Awareness Day

The First Saturday in May is International CdLS Awareness Day.

Check in to find out where picnic days are being held. If you would like to host an event please contact us for more information.

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