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Cornelia de Lange Syndrome Association (Australasia) Inc

Reaching Out - Providing Help - Giving Hope to Families

News

2018 Conference - Brisbane

Our 2018 CdLS Conference and AGM will be held on Saturday 8th and Sunday 9th December at the Park Regis Hotel in Brisbane. Three extremely knowledgeable doctors with a lot of experience in CdLS will be attending: Dr Jane Law (GP specialising in adults with disabilities from Sydney), Dr Barry Lipschitz (Paediatric Gastroenterologist from Melbourne) and Prof Chris Oliver (Psychologist and expert on behaviours in people with intellectual disability, CdLS International SAC, from Great Britain).

Registration and membership forms are now available by emailing president@cdls.org.au.

Special rates for accommodation are being offered on rooms set aside for our group. You will need to ring the hotel directly. Mention you are with the CdLS group when you ring (07) 3013-7200 to book.

Rates for the CdLS Conference are $119 per night for a standard room. There are several types of room available including 2 bedroom linked rooms. Please make sure you let them know the number of people in your group.

They will also need to be told your check in and check out dates. The special rate will apply to your whole stay (except for 6th which is another event booking).

You can have a look at the hotel and the room configurations here.

We are organising childcare while we are in meetings and talks. To ensure sufficient volunteers are available please let us know as soon as possible the ages of all children and identify who has CdLS.

We hope you can make it!

Notice of Annual General Meeting - Cornelia de Lange Syndrome Association Inc

Saturday 8th December 2018 at 4.00pm. Park Regis North Quay, Brisbane. All welcome. Only financial members of the Association are able to vote and are invited to join the management committee. For details email president@cdls.org.au.

Research Participation Opportunity - June 2018

Australian and New Zealand CdLS Families are invited to take part in a speech, language and feeding issues research project approved by the Elmhurst College, IL, USA being conducted by Cheri Carrico.

Professor Carrico (Undergraduate Program Director, Communication Sciences and Disorders. NSSLHA Advisor) has been on the CdLS International Scientific Advisory Council for many years and is a highly respected speech pathologist with special interest in feeding issues. She presented at the International CdLS conference in Sydney in 2003.

Permission and instructions are at the end of the survey.

IRB Approval Letter

Download Questionaire

CdLS Clinic Day and Annual General Meeting

Each year in November we hold our CdLS Clinic Day and Annual General Meeting by turn in cities around Australia. Specialist doctors and therapists attend to update families on progress in their area of expertise and one:one consultations are offered. This is a great opportunity to meet other parents, people with CdLS, and their siblings.

In 2018 this will be held in Brisbane. Watch this space for details, which will be available closer to the time.

Clinic Day CdLS Australia

International CdLS Awareness Day

The First Saturday in May is International CdLS Awareness Day.

Check in to find out where picnic days are being held. If you would like to host an event please contact us for more information.

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