The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) is a family support organisation. We exist to support you and your family, with emotional support, a community, and quality information so you can make informed decisions. We also work to assist the accurate diagnosis of CdLS and promote research into the cause and manifestations of the syndrome.
CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS. The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.
The group was incorporated in 1995 and countries supported by CdLSA are Australia, New Zealand, Malaysia, Philippines, Singapore and other Pacific Nations. We do not receive any regular Government funding, and rely on membership fees for information dissemination via our newsletter 'Keeping in Touch' (KIT). We also produce topic specific information packages, provide counselling, and host awareness activities.